United Kingdom hospital regrets protracted dispute over Charlie Gard treatment

28 July, 2017, 00:28 | Author: Chad Mckenzie
  • CHILDREN'S HEALTHJudge Baby Charlie Gard will end life in hospice not home	Email		
							
				
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Charlie will spend his final hours at the hospice before a ventilator that keeps him alive is turned off.

The baby's rare genetic condition, which was diagnosed when he was 3 months old, is an inherited mitochondrial disease generally referred to as MDDS, or mitochondrial DNA depletion syndrome.

They originally sought to take the child home, before saying he should receive life support treatment in a hospice for several days.

"His mother, Connie Yates, told the BBC earlier this year that they wanted to take him to the USA for an experimental treatment: 'If we don't get this opportunity, he's going to die". The parents brought the legal action because they disagreed with Great Ormond Street Hospital in London, which is caring for Charlie.

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Charlie has been a patient at Great Ormond Hospital for the last nine months of his life.

The parents' cause caught the attention of U.S. President Donald Trump and Pope Francis and also garnered widespread grassroots support.

The judge additionally ruled that neither the hospice nor its staff can be identified.

Ms Yates added that two doctors and a team of intensive care nurses had offered to provide care for Charlie, but Mr Justice Francis "ordered against what we have arranged and has agreed to what GOSH asked".

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However, GOSH bosses said treatment should end shortly after Charlie's arrival, with a hospital representative describing the parents' plans as not "in any way viable". "I hope you are happy with yourself".

The guardian was appointed to represent Charlie's interests as relations between his parents and Great Ormond Street Hospital, a pioneering pediatric center, soured.

Earlier, GOSH said it regretted that its "profound and heartfelt" differences with Charlie's parents had played out in court. In Britain, courts make right-to-life decisions, not patients or families, as is usually the case in the United States.

If no agreement was reached, Charlie would be transferred to a hospice and his ventilation tube removed. Charlie is unable to move his arms or legs or breathe unaided. "This is the most hard thing that we have been given to do" goal, "we have made a decision to let go of our child", said a tearful Connie Yates, the mother of the baby, before the High Court of London.

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"For Charlie it is too late".

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